It’s a little bit frightening to put my health protocol online. Readers must understand that this is a regimen that works for me with my particular form of ME/CFS. Everyone is different. Every single person with ME/CFS should see a health practitioner who is well educated & informed about myalgic encephalomyelitis, because there are several possible culprits that may have lead to the health condition of each, including Lyme disease, various active viruses, digestive problems, neurological abnormalities, blood diseases, vitamin deficiencies, etc. So please know that this is not meant to be a prescription for you and I am not a medical doctor. I am just one patient sharing what is working for me.
Vitamin D3 both transdermal patches and oral (8,000 – 10,000 IU in the winter) ~ why do I take this?
B-Minus (Doesn’t have folic acid or B12 which I take separately). For some reason, when I take this daily, I get a highly elevated B6 which will cause neuropathic pain if one has too little OR too much, so I take one of these every 3-4 days and on the other days I just take the Thiamine and Riboflavin separately. Thiamine is VERY helpful in reducing post-exertional pain and malaise.
Trace Minerals (250 mcg Iodine, 30 mg Zinc, 200 mcg Selenium, 4 mg Manganese, 200 mcg Chromium,150 mcg Molybdenum, 99 mg Potassium, 500 mcg Boron, 150 mcg Vanadium, 100 mcg Horsetail) ~ pulsed, which means that I don’t take this every day but also as needed ~ why do I take this?
Omega 3 (200mg) ~ in the form of cold pressed organic flaxseed oil ~ why do I take this?
Liposomal bovine colostrum – why do I take this?
No longer taking Famciclovir ~ it was prescribed to hinder reactivation of EBV, but the efficacy of antivirals for this is highly debated among doctors and I was getting kidney pain and higher bilirubin counts on it, so I stopped. I need more convincing research that the benefits out-weigh the risk before I take it again.
Upper cervical chiropractic adjustments twice monthly. This is not a typical chiropractic adjustment, but rather, a more gentle, highly-specific adjustment to the top vertebrae (C1) in order to balance the weight of the head correctly on my spine and therefore take pressure off of my brainstem and spine. Doctors with this approach can be found at http://www.nucca.org/ My doctor is Dr. Jerome Sweitzer in Orlando, FL.
** Update Warning** As I’ve followed Jen Brea’s story about her Cranial Cervical Instability (CCI) with ME/CFS, I’ve joined her FB group about this. Someone in this group had a bad experience with a NUCCA chiropractor’s adjustments, so be cautious. I have had a very good experience with my doctor but apparently this isn’t the case for everyone.